A Caregiver’s Guide to Alzheimer’s Disease: 300 Tips for Making Life Easier (2006) (PDF) by Patricia R. Callone

Description

“An estimated 5 million Americans have Alzheimer’s disease. That number continues to grow – by 2050 the number of individuals with Alzheimer’s could range from 11.3 million to 16 million. Alzheimer’s disease is not a normal part of aging. It is a devastating disorder of the brain’s nerve cells that impairs memory, thinking, and behavior. Written for patients, their families, and caregivers, A Caregiver’s Guide to Alzheimer’s Disease: 300 Tips for Making Life Easier will help readers understand what is physically happening to the brain so they can empower their own special skills and talents throughout the disease process. The book is divided into three sections that correspond to the progression of Alzheimer’s and the unique challenges encountered at each stage.

Section A: The major part of the book divides the progression of the disease into Stages: the Pre-Clinical Stage Early-To-Mild Stage, which marks the onset of the disease Moderate Stage and the Severe Stage. Hundreds of practical tips geared to coping and compensating at each level of the disease provide support for the affected individual and the caregiver.

User’s Reviews

“As the authors of this handy, elucidating and empathetic guide take readers through the progression of Alzheimer’s disease, they pay special attention to the patient, having them understand what will be happening to them and making sure that they, and those entrusted with their care as the disease takes its course, tap into their special skills and talents as long as they are able….The authors effectively relate the importance of empathy and patience, as well as having a plan and a network of friends and advisors to deal with the progression of Alzheimer’s disease.”–Kirkus Reports

“This book, which I can thoroughly recommend, is certainly revealing and contains much that is critical for caregivers to know. I believe every professional working with those in dementia and their caregivers would do well to have a copy. The book lends itself to reading straight through and then to being used as and when it is necessary as a reference. It is easy to find specific information as the framework is helpful and logical. The sections on the spiritual needs of those with dementia were welcome topics… I wish I had had this book when I set out on the caregiving journey.” –International Journal of Geriatric Psychiatry (International Journal of Geriatric Psychiatry 20100503)

I have read several books and articles on the subject but had not found any as helpful. The style of describing the specific setting shared by father and daughter as the disease progressed was very informative and provided a setting to better understand the many changes that accompany a single event like forgetting one’s favorite meal. Alzheimer is a horribly progressive disease and it is helpful to know what is coming next. Knowledge is power and being prepared for progressive loss of control eases the caregiver through the stages. I was able to connect with the writer and found her observations to be credible and appropriate. This read may be better suited to a family member than a clinician but anyone will benefit from reading this. My sympathy goes to anyone who is living this experience. Learn as much as possible and try not to be surprised by what you experience tomorrow.

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