Description
Age-related macular degeneration (AMD) is a progressive disease of the retina wherein the light-sensing cells in the central area of vision (the macula) stop working and eventually die. AMD is the leading cause of legal blindness in people over 50. From the moment of his own diagnosis, educator and musician Dan Roberts has made it his mission to provide the most up-to-date information about AMD, its effects and challenges, through his website at mdsupport.org. Receiving over 60,000 unique visitors monthly, MD Support is the go-to for all things AMD. Now, as a “patient-expert,” Roberts applies his wealth of knowledge to the First Year series, providing crucial information for the newly diagnosed, including cutting edge therapies, and tips on how to navigate everyday tasks with diminishing eyesight. The First Year-Age Related Macular Degeneration is an essential resource for everyone who wants to be an informed, active participant in the management of their condition.
Reviews
Reviews from Amazon users which were colected at the time this book was published on the website:
âThis book is very informative and helpful, for both me and my partner.
âI liked this book very much. It covered a lot of practical questions in a clear, concise way. There weren’t too many technical terms used so it was easy to understand and in the back of the book there were appendixes with more information on where to get help, definitions of terms used and much more. I would reccommend this book to any newly diagnosed person it helps explain what is going on and what to expect. It is also a good book for family and friends to read because it gives insight into what is happening to the person with the AMD.
âI was so sad and depressed when I found out I had MD. It started as the dry type and progressed to the more serious wet type. I finally learned how to help myself deal with this. I get shots in my eye and take Maximum Eye vitamins. My Retina doctor was so impressed with my progress, improving by 95%. I owe a lot of this to reading this book and learning how to help my eyes. I would recommend it to anyone who has MD.
âIf you are a person who has just been diagnosed with age related macular degeneration, you will find this a useful book. I returned it as it was not what I was looking for: a simple book to encourage my 83 year old mother who has pretty good vision that is not deteriorating. The book is aimed at people more affected with this condition than she is. She may need it later down the road, but hopefully not!
âAs a newly diagnosed macular degeneration person, I am learning what to expect and it is helping me identify the changes that I am experiencing. The book is helping validate the feelings and changes I have. After I finish the book, I plan on passing it on to my family. It is so difficult to explain what I actually see but the book explains it perfectly.I
âOrdered this book after receiving the Macular Degeneration diagnosis from my Eye Dr. He gave me no informatin about things I could do to prevent futther damage or any other info. This book is great- learned lots of things I can do to help myself and where to receive additional help. I would likely recommend this book to anyone receiving this ARMD diagnosis.
âI searched for data on macular degeneration after being diagnosed. I bought this book along with several others. Material found in it has helped me cope with the idea that there is no cure for it. There are treatments however and things to do to help yourself. I found this book most helpful.
âThis book was in a list we received from our support group without comment – no pushing, just resrouces. It has some good information but it “sounds like” the author is really full of himself. After visiting their website, and reading archives of others with impaired vision and AMD, it appears he’s pushing products against physicians recommendations, and many on his site seemingly think he’s a doctor, or have an adoration-complex with this author. No doubt, he means well, but overall as my own doctors have recommended, “always talk to your physician before taking anything” and that includes supplements pushed on a website or in a book.The author’s reference to independent living training is spot on – we entered that some years back. Overall, as our group facilitator always says, we need to focus on the things we can change to deal with this disease, not fret about alternative choices, etc. “just talk to your physician.” She is correct.For the record, my spouse has had AMD for 10 years and so we tried this book. I wouldn’t buy it again. The National Federation for the Blind, and NIH has all the accurate and most up to date information one needs, and there’s no pushing one drug treatment over another without adequate replicated studies.
âMust reading for anyone afflicted with this disease.
âThis is absolutely essential reading for anyone who has been diagnosed with either wet or dry macular degeneration. To be diagnosed is totally frightening and there are hundreds of questions that people want to ask which are answered. Just as important is information you didn’t even know you needed – about what treatments work and why, what you can do to slow down the disease, ways of coping that you might not have thought of.It is written by someone who has had the disease for many years and who runs a support forum in a non-hysterical and informative way. A total must.
âVery informative book, a must for any one newly diagnosed with AMD, a lot of encouragement given, it certainly gave me huge insight into this very distressing disease.
